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DNA records pose new privacy risks

EFF IN THE NEWS
January 23, 2013

"We release information about ourselves without thinking about where it’s going to go and what it means to us," said Jennifer Lynch, a staff lawyer at the Electronic Frontier Foundation, a nonprofit digital rights group. "And in many instances, I think we release that information for good reason. There’s a lot to be gained by giving up samples of DNA for research purposes."

Lynch said her fear is that something a single researcher did in three to seven hours could easily be automated and used by companies or insurers to make predictions about a person’s risk for disease. ­Although the federal Genetic Information Nondiscrimination Act protects DNA from ­being used by health insurers and employers to discriminate against people, she and others consider it insufficient.

Friday, January 18, 2013
Boston Globe
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